The power of social media is AWESOME!
Feelin' one of those "I walked 10 miles, uphill, in the snow, with no shoes, to school and back every day" kinda stories coming on!
I really wish we had this kind of technology to reach out and share our stories/concerns/joys when Josh was little!
Feelin' one of those "I walked 10 miles, uphill, in the snow, with no shoes, to school and back every day" kinda stories coming on!
I really wish we had this kind of technology to reach out and share our stories/concerns/joys when Josh was little!
#JusticeForEthan as a true grassroots effort
I, for one, have been so busy working, worrying, posting, letter writing, etc. that I haven't had time to sit back and look at the big picture. There are so many people out there working toward #JusticeForEthan, each in their own zone, that it's easy to miss the impact of the combined efforts. Gail Zahtz has pointed that out to me and she's sharing it with her HUGE community via Demand Design and Car Pool Health Care (#CPHC).
If you're wondering where that name came from, and why I'm writing about it, give her site a peek!
Gail is using her extensive resources to cover #JusticeForEthan all week. With this coverage, we're really branching out and getting our message to a new group of people. We're broadening our audience to include health care professionals of all types, media professionals, and policy types. She put some time and effort into making a compiled list of some of the highlights of the movement (it's a work in progress). She hit a lot of the major points in a really short time. (We've been living with this for eight months, Gail joined us less than a week ago!)
If you're wondering where that name came from, and why I'm writing about it, give her site a peek!
Gail is using her extensive resources to cover #JusticeForEthan all week. With this coverage, we're really branching out and getting our message to a new group of people. We're broadening our audience to include health care professionals of all types, media professionals, and policy types. She put some time and effort into making a compiled list of some of the highlights of the movement (it's a work in progress). She hit a lot of the major points in a really short time. (We've been living with this for eight months, Gail joined us less than a week ago!)
Share YOUR Voice
Gail has graciously offered the use of her website as a place where we can all post! Imagine - one place for everything #JusticeForEthan related! I would like to see ALL perspectives represented there! I know we have many diverse opinions on how to move forward. The only way to do that well is if we can collaborate - really listen and learn from each other, and work toward making things better for our kids.
To add your voice - go to Demand Design and register. She's building a separate "community" for Down syndrome and you can post your articles there.
To add your voice - go to Demand Design and register. She's building a separate "community" for Down syndrome and you can post your articles there.
Today's Chat
Gail holds weekly chats on Twitter, and this week she featured #JusticeForEthan. I'd never even heard of such a thing until last week. Today was an experience! Talk about fast paced! Wow!
The object is that everyone uses the #CPHC hashtag, and communicates in what they call a stream (I think). When it's over, they produce a transcript for those who couldn't participate so they can follow all the action. (You really must see this to believe it). #CPHC has a regular (and I might add HUGE!) audience, but anyone can participate.
Today we talked about several issues, including the idea of a "safety sign" and what the #JusticeForEthan movement needs to keep working and moving forward. I know there are LOTs of opinions out there, different from mine, and I sincerely hope we get to see more of them as this week progresses.
There is so much more to come this week! I'm SUPER excited!
The object is that everyone uses the #CPHC hashtag, and communicates in what they call a stream (I think). When it's over, they produce a transcript for those who couldn't participate so they can follow all the action. (You really must see this to believe it). #CPHC has a regular (and I might add HUGE!) audience, but anyone can participate.
Today we talked about several issues, including the idea of a "safety sign" and what the #JusticeForEthan movement needs to keep working and moving forward. I know there are LOTs of opinions out there, different from mine, and I sincerely hope we get to see more of them as this week progresses.
There is so much more to come this week! I'm SUPER excited!